Finally, I am starting to feel better. It was a very busy week with graduations and family visiting but I felt pretty good. My energy level is still not back and naps in the afternoon are still in order. I am starting to work out (no running) to put back on some of the weight I lost prior to the surgery.
We set a surgery date of July 29th. A little later than I had hoped but still with in the optimum date range for the surgeon. Unfortunately, until the look inside me, we will not know the extent of the surgery or treatment after. I am really hoping for a clean bill and not post surgery chemo.
I will have some follow up visits with the doctors over the next weeks and I will pass on any updates. I still have a lot of questions about recovery etc. but it looks like at least 5 days in the hospital. For now I am going to try to get back to work and enjoy the next 5 weeks of summer with my family.
Saturday, June 21, 2008
Thursday, June 12, 2008
June 12
I know I have little to complain about but most who know me would think some one else was writing if I did not whine.
I met with the surgeon yesterday he was very encouraging short of wanting me to do another round of chemo after surgery. He is the only one not concerned and actually happy with my weight loss, apparently it makes his job easier. We are waiting for some answers, but the surgery will either be on July 22 or July 29. He remains very positive (97%) that the surgery will be successful and this will all be a bad memory in 6 months. He won't give me a 100% guarantee because then if he is wrong it will effect his sleep.
Cynthia and I met with the oncologist after the surgeon. He too was very positive but also warned me that the radiation and chemo keep working in my body and not to expect too much. He does not want to deal with the chemo after the surgery until they get the pathology on the lymph nodes, which will happen during the surgery. I was very disappointed to hear that if I do the chemo after it will be more intense and for 4 months.
The oncologist also warned me about sun exposure for the next 4 weeks. We are trying to plan a family vacation for July before the surgery but I think my fishing trip with Aaron for his graduation will have to be postponed or modified.
Cynthia did ask if there were diminished cognitive abilities due to the chemo; unfortunately, the oncologist did say there was a term "chemo brain." I have a feeling that statement is going to fuel many more "discussions" in our family especially with the election coming up. Just remember, I was a republican before the chemo, if thing change one can only assume...
The pain and exhaustion this week has been more intense than ever and my sleep has not been good, but I really have little to complain about. The doctors are all still very positive about the long term results, the nausea is for the most part gone, I can start back on a mild exercise routine including the bow flex and I know I am going to feel better with in the next few weeks. Most importantly, I am very thankful for the the love and support of my friend and family.
I will update again as the surgery date is finalized.
I met with the surgeon yesterday he was very encouraging short of wanting me to do another round of chemo after surgery. He is the only one not concerned and actually happy with my weight loss, apparently it makes his job easier. We are waiting for some answers, but the surgery will either be on July 22 or July 29. He remains very positive (97%) that the surgery will be successful and this will all be a bad memory in 6 months. He won't give me a 100% guarantee because then if he is wrong it will effect his sleep.
Cynthia and I met with the oncologist after the surgeon. He too was very positive but also warned me that the radiation and chemo keep working in my body and not to expect too much. He does not want to deal with the chemo after the surgery until they get the pathology on the lymph nodes, which will happen during the surgery. I was very disappointed to hear that if I do the chemo after it will be more intense and for 4 months.
The oncologist also warned me about sun exposure for the next 4 weeks. We are trying to plan a family vacation for July before the surgery but I think my fishing trip with Aaron for his graduation will have to be postponed or modified.
Cynthia did ask if there were diminished cognitive abilities due to the chemo; unfortunately, the oncologist did say there was a term "chemo brain." I have a feeling that statement is going to fuel many more "discussions" in our family especially with the election coming up. Just remember, I was a republican before the chemo, if thing change one can only assume...
The pain and exhaustion this week has been more intense than ever and my sleep has not been good, but I really have little to complain about. The doctors are all still very positive about the long term results, the nausea is for the most part gone, I can start back on a mild exercise routine including the bow flex and I know I am going to feel better with in the next few weeks. Most importantly, I am very thankful for the the love and support of my friend and family.
I will update again as the surgery date is finalized.
Tuesday, June 10, 2008
June 10
I had my last radiation treatment today, that is the good news, the bad news is that apparently the radiation keeps working for another week and the symptoms won't go away for 2-4 weeks. I was hoping for a balloon, loli pop and a pat on the back, not being told to expect more of the same.
I had a rough day on Saturday. I started out thinking the chemo was out of my system so I went for a run. If there is anyone out there who still may harbor thoughts that my boys get their intelligence from my side, this decision will put that question to rest. I made it about a mile into the run. The radiologist today also scolded me and told me short walks for the next month should suffice.
Everyone is still very supportive and encouraging. I am meeting with my Surgeon and Oncologist tomorrow, hopefully I will have a better idea of the timing for surgery and the next course of action.
I had a rough day on Saturday. I started out thinking the chemo was out of my system so I went for a run. If there is anyone out there who still may harbor thoughts that my boys get their intelligence from my side, this decision will put that question to rest. I made it about a mile into the run. The radiologist today also scolded me and told me short walks for the next month should suffice.
Everyone is still very supportive and encouraging. I am meeting with my Surgeon and Oncologist tomorrow, hopefully I will have a better idea of the timing for surgery and the next course of action.
Friday, June 6, 2008
June 6
I finished Chemo this week on Wednesday. I thought magaically I would be feeling back to my old self. Either I forget what my old self really felt like or the doctors were correct in warning me about the cumulative effects and recovery time.
I really should not complain after hearing how others have endured the side effects of the radiation and chemo, but I still like to whine.
I have two more radiations and then, according to the doctors again, it continues working in my body for another week before the recovery and healing start. For my part I am still at 2 naps a day and starting to take baths.
I meet with all my doctors next Tuesday and Wednesday and will probably start another round of testing. Hopefully, I will get some direction on timing of surgery.
I continue to learn from this experience some life lessons and some more trivial. I know that all the support and encouragement from everyone has really helped me and all those years of exercising and eating well have really paid off.
I really should not complain after hearing how others have endured the side effects of the radiation and chemo, but I still like to whine.
I have two more radiations and then, according to the doctors again, it continues working in my body for another week before the recovery and healing start. For my part I am still at 2 naps a day and starting to take baths.
I meet with all my doctors next Tuesday and Wednesday and will probably start another round of testing. Hopefully, I will get some direction on timing of surgery.
I continue to learn from this experience some life lessons and some more trivial. I know that all the support and encouragement from everyone has really helped me and all those years of exercising and eating well have really paid off.
Saturday, May 31, 2008
May 31
I made it through my last (for now) chemo drip in the infusion room. This time around the effects are more intensive, but that is what they told me to expect.
The TV chair was already taken so there were no fights over the Fox news channel. I met the most amazing woman, one of the volunteers who keeps coming by and telling you to drink water. She over heard me talk about Aaron's pole vaulting. Turns out she was an Olympic pentathlete in the early 60's. I really enjoyed speaking with her about sportsmanship and the earlier Olympics. The bad part of the story is that I think she thought I was from that generation as well.
Cynthia came in for the last part of my treatment and took a picture of me in the barcalounger.
I have this last week of the regular Chemo and then radiation until next Tuesday. Most of my energy in gone but I am still eating and reasonably coherent (although my kids would disagree with the last statement)
The more I ponder this setback the more fortunate I feel about how early it was dectected. Unfortunately, I am like a broken record to anyone on my generation (not a 1960 olympic athlete) to get checked early. Every time I talk with someone new about it, I hear a story about someone in their 40's who found out about their colon Cancer and they were already at stage 3 or 4.
I am really looking forward to finishing up and feeling better. In the meantime every one's support, thoughts and prayers are helping me get through this last stretch.
The TV chair was already taken so there were no fights over the Fox news channel. I met the most amazing woman, one of the volunteers who keeps coming by and telling you to drink water. She over heard me talk about Aaron's pole vaulting. Turns out she was an Olympic pentathlete in the early 60's. I really enjoyed speaking with her about sportsmanship and the earlier Olympics. The bad part of the story is that I think she thought I was from that generation as well.
Cynthia came in for the last part of my treatment and took a picture of me in the barcalounger.
I have this last week of the regular Chemo and then radiation until next Tuesday. Most of my energy in gone but I am still eating and reasonably coherent (although my kids would disagree with the last statement)
The more I ponder this setback the more fortunate I feel about how early it was dectected. Unfortunately, I am like a broken record to anyone on my generation (not a 1960 olympic athlete) to get checked early. Every time I talk with someone new about it, I hear a story about someone in their 40's who found out about their colon Cancer and they were already at stage 3 or 4.
I am really looking forward to finishing up and feeling better. In the meantime every one's support, thoughts and prayers are helping me get through this last stretch.
Wednesday, May 28, 2008
May 28
Just a quick update before my last drip infusion tomorrow. I am ready to get on with it but the last session really hit me. I met with my radiologist Tuesday and found they are going to give me 3 additional boost sessions, so I will not be finished until June 10. Hopefully this will give me enough time to recover prior to Jason and Aaron's graduations.
I am well equiped with all kinds of reading material for tomorrow and headphones just in case. My energy level has really been off although I did manage to go into work for a couple of hours today and I walked the dogs this evening, small victories.
I will try to post later this weekend, hopefully my humor will return along with my appetite and taste.
I am well equiped with all kinds of reading material for tomorrow and headphones just in case. My energy level has really been off although I did manage to go into work for a couple of hours today and I walked the dogs this evening, small victories.
I will try to post later this weekend, hopefully my humor will return along with my appetite and taste.
Friday, May 23, 2008
May 23
Today was a 2 nap day and it's not over yet. Back on the chemo and yesterday took it out of me. One the plus side I was feeling a lot better earlier in the week.
I went to a different yoga class (restorative yoga), they don't laugh at you as much and when you look like you are in pain with a particular pose they come by with blankets to help. It did feel good to stretch out. I also went for a run on Wednesday realizing it was my last one for a while before starting up on the chemo again. I had to walk the last half mile so I think the radiation is taking its toll, at least that's the story I told the dogs when they looked at me in disbelief.
I met with my oncologist on Thursday after the drip and that was the best part of my day. My blood counts are great. He was very pleased that they have not dropped at all and my bone marrow looked good as well. Apparently all those years of healthy living (only eating hamburgers and chorizo burritos when Cynthia was not looking) have paid off.
They did start me on a couple of other medications the counter some of the radiation and chemo effects including Flow Max and Prilosec, I think I am one pill away from complete geriatrics.
I have about 2 more weeks to go, they are not sure if they are going to do a radiation boost of another 3-5 treatments. I will then get more invasive exams and they will set a tentative surgery schedule. They may do a round of chemo after surgery just so I have something to look forward to, but I should be completely wrapped up in 3-4 months.
The older English Lady in the chemo room (lung cancer patient fro smoking) actually gave me a Bill Bryson book because she said she enjoyed my laugh. She then proceeded to point out to me in the room who she thought was a "goner." I was a little shocked so she explained to me that is what they say in England "a goner." Obviously I am not in that category or she would not have invested in the book for me.
I do appreciate her support but even more so all the other support from friends and family. I know it has been hard on Cynthia and the boys, but they are all doing well. With all the good news about my condition I know the prayers and good thoughts are coming through. I have been warned by both doctors that the effects are cumulative and I will be more and more exhausted the next three weeks but I will continue to update as I go.
I went to a different yoga class (restorative yoga), they don't laugh at you as much and when you look like you are in pain with a particular pose they come by with blankets to help. It did feel good to stretch out. I also went for a run on Wednesday realizing it was my last one for a while before starting up on the chemo again. I had to walk the last half mile so I think the radiation is taking its toll, at least that's the story I told the dogs when they looked at me in disbelief.
I met with my oncologist on Thursday after the drip and that was the best part of my day. My blood counts are great. He was very pleased that they have not dropped at all and my bone marrow looked good as well. Apparently all those years of healthy living (only eating hamburgers and chorizo burritos when Cynthia was not looking) have paid off.
They did start me on a couple of other medications the counter some of the radiation and chemo effects including Flow Max and Prilosec, I think I am one pill away from complete geriatrics.
I have about 2 more weeks to go, they are not sure if they are going to do a radiation boost of another 3-5 treatments. I will then get more invasive exams and they will set a tentative surgery schedule. They may do a round of chemo after surgery just so I have something to look forward to, but I should be completely wrapped up in 3-4 months.
The older English Lady in the chemo room (lung cancer patient fro smoking) actually gave me a Bill Bryson book because she said she enjoyed my laugh. She then proceeded to point out to me in the room who she thought was a "goner." I was a little shocked so she explained to me that is what they say in England "a goner." Obviously I am not in that category or she would not have invested in the book for me.
I do appreciate her support but even more so all the other support from friends and family. I know it has been hard on Cynthia and the boys, but they are all doing well. With all the good news about my condition I know the prayers and good thoughts are coming through. I have been warned by both doctors that the effects are cumulative and I will be more and more exhausted the next three weeks but I will continue to update as I go.
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